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Mitochondrial Disease Research Letter to President Obama

Source: Mitoblog - Download PDF Version

January 22, 2009

President Barack Obama
The White House
1600 Pennsylvania Avenue, NW
Washington, DC 20500

Dear President Obama:

We represent a broad spectrum of physicians, scientists and researchers and are writing to express our strong support for your commitment to expand scientific research. As you consider this increased investment in science, we want to highlight a very important and potentially far-reaching area of inquiry. Specifically, greater understanding of the mitochondria could provide insights into treatments for a wide range of diseases and conditions that affect millions of Americans.

Mitochondria are often called the "powerhouses of the cell." They are specialized compartments within almost every cell and are responsible for producing the energy needed by our body to sustain life. Mitochondria combine oxygen from the air we breathe with calories from food to produce the energy required for all bodily functions. If the mitochondria fail to produce sufficient energy, the cell will not function properly and organ systems will fail.

Research has revealed that mitochondrial dysfunction is at the core of many common illnesses and chronic conditions such as Alzheimer's disease, Parkinson's disease, diabetes, heart disease, obesity, osteoporosis, cancer and even the aging process. Autoimmune diseases such as multiple sclerosis, lupus and rheumatoid arthritis also may have a mitochondrial basis. There also is new evidence that mitochondrial dysfunction plays a role in the cause of some children's autism.

There also are "primary" mitochondrial diseases that usually result from genetic defects that reduce the ability of the mitochondria to produce energy. Mitochondrial disease was recognized relatively recently with the first cases diagnosed in adults in the 1960s and in children in the 1980s. Every 30 minutes a child is born who will develop a mitochondrial disease by age ten. Research published six months ago showed that more than 1 in 200 people have mitochondrial DNA mutations that could lead to mitochondrial disease.

Acknowledging the potentially far-reaching implications that would result from a deeper understanding of the mitochondria, The National Institutes of Health recently committed to establish a mitochondria research initiative that would involve all NIH institutes. This initiative will play a significant role in advancing science and medicine. In the 2008 appropriations legislation, the United States Congress expressed its support for intensified mitochondrial research within NIH.

While some steps are being taken, much more could be done to increase our understanding of this critical area of human health. Because mitochondria are so important to the health of cells, a full understanding of their function and dysfunction will have a significant impact on the health of our citizens and will lead to prevention and cures for medical problems that currently affect millions of Americans. We respectfully urge your Administration to include research into mitochondrial medicine among your top medical and research priorities.

Respectfully,

Salvatore DiMauro, MD
Lucy G. Moses Professor of Neurology
Columbia University
New York, NY

Bruce H. Cohen, MD
Chief of Pediatric Neurology
The Cleveland Clinic
Cleveland, OH

Robert K. Naviaux, MD, PhD
UCSD Mitochondrial and Metabolic Disease Center
University of California - San Diego
San Diego, CA

Peter W. Stacpoole, PhD, MD
Director, General Clinical Research Center
Director, Clinical and Translational Science Institute
Associate Dean, Clinical Research and Training
University of Florida
Gainesville, FL

Sidney M. Gospe, Jr., MD, PhD
Herman and Faye Sarkowsky Endowed Chair
Head, Division of Pediatric Neurology
Professor of Neurology and Pediatrics
University of Washington
Seattle, WA

Vamsi Mootha, MD
Associate Professor, Department of Systems Biology
Harvard Medical School & MGH/Broad Institute
Cambridge, MA

David Chan, MD, PhD
Associate Professor of Biology
California Institute of Technology
Pasadena, CA

Michael A. Frohman, MD, PhD
Professor & Chairman
Department of Pharmacological Sciences
Director
Medical Scientist Training Program (MD/PhD, MSTP)
Center for Developmental Genetics
Stony Brook University
Stony Brook, NY

Keshav Singh, PhD
Professor of Oncology
Department of Cancer Genetics
Roswell Park Cancer Institute
Buffalo, NY

Douglas S. Kerr, MD, PhD
Director
Center for Inherited Disorders of Energy Metabolism
Professor, Department of Pediatrics
Case Western Reserve University School of Medicine
Cleveland, OH

Michio Hirano, PhD
Associate Professor of Neurology
Neurological Institute
Columbia University
New York, NY

Russell P. Saneto, DO, PhD
Associate Professor of Neurology and Pediatrics
University of Washington
Seattle, WA

Susan P. LeDoux, PhD
Assistant Dean for Curriculum
Professor and Vice-Chair
Department of Cell Biology and Neuroscience
University of South Alabama
Mobile, AL

Amy C. Goldstein, MD
Child Neurologist, Division of Child Neurology
Children's Hospital of Pittsburgh of UPMC
Clinical Assistant Professor of Pediatrics & Neurology
University of Pittsburgh School of Medicine
Pittsburgh, PA

Kendall B. Wallace, PhD
Diplomate, American Board of Toxicology
Fellow, Academy of Toxicological Sciences
Editor, Toxicology
Professor, Biochemistry & Molecular Biology
University of Minnesota Medical School
Duluth, MN

Arun Srivastava, PhD
George H. Kitzman Professor of Genetics
Chief, Division of Cellular and Molecular Therapy
Departments of Pediatrics, Molecular Genetics &
Microbiology, Powell Gene Therapy Center
Assistant Director, General Clinical Research Center
Cancer and Genetics Research Complex
University of Florida
Gainesville, FL

Gregory M. Enns, MB, ChB
Director, Biochemical Genetics Program
Division of Medical Genetics
Stanford University
Stanford, CA

William Craigen, MD, PhD
Molecular and Human Genetics
Baylor College of Medicine
Houston, TX

Juan M. Pascual, MD, PhD
Assistant Professor
Departments of Neurology, Physiology
Pediatrics Division of Pediatric Neurology
University of Texas Southwestern Medical Center
Dallas, TX

Antoni Barrientos, PhD
Associate Professor
Department of Neurology and Cell Biology & Anatomy
Miller School of Medicine
University of Miami
Miami, FL

Marni J. Falk, MD
Assistant Professor of Human Genetics
University of Pennsylvania
Director, Mitochondrial-Genetics Diagnostic Clinic
The Children's Hospital of Philadelphia
Philadelphia, PA

Mikhail Alexeyev, PhD
Assistant Professor
University of South Alabama
Mobile, AL

Francisca Diaz, PhD
Research Assistant Professor
Department of Neurology
Miller School of Medicine
University of Miami
Miami, FL

Oleh Khalimonchuk, PhD
Departments of Biochemistry and Internal Medicine
Health Sciences Center
University of Utah
Salt Lake City, UT

Beverly A. Rzigalinski, PhD
Professor of Pharmacology
Virginia College of Osteopathic Medicine
Blacksburg, VA

Brett H. Graham, MD, PhD
Assistant Professor
Department of Molecular and Human Genetics
Baylor College of Medicine
Houston, TX

Margaret Sedensky, MD
Director of Research Training
Department of Anesthesiology
University of Washington
Seattle, WA

Linda L. Spremulli, PhD
Professor of Chemistry
University of North Carolina
Chapel Hill, NC

Robert S. Weiss, PhD
Associate Professor of Molecular Genetics
Department of Biomedical Sciences
Cornell University
Ithaca, NY

Sandra R. Bacman, PhD
Department of Neurology and Cell Biology & Anatomy
Miller School of Medicine
University of Miami

Patrick F. Chinnery, MBBS, PhD, FRCPath, FRCP
Professor of Neurogenetics
The Medical School
Framlington Place
Newcastle upon Tyne, UK

Annette Feigenbaum, MD, ChB, FRCP
Associate Professor, Department of Pediatrics
University of Toronto
Medical Director, PKU Program
The Hospital for Sick Children
Toronto, Ontario Canada

Eric A. Shoubridge, PhD, FRSC
Professor, Departments of Neurology and Neurosurgery
and Human Genetics
Montreal Neurological Institute
McGill University
Montreal, Quebec Canada

Anu Suomalainen, MD, PhD
Sigrid Juselius Professor of Clinical Molecular Medicine
Finnish Centre of Excellence for Research on
Mitochondrial Disease and Aging (FinMIT)
University of Helsinki
Helsinki, Finland

Douglas C. Wallace, PhD
Director, Center for Molecular & Mitochondrial Medicine and
Genetics
Biological Chemistry School of Medicine
University of California - Irvine
Irvine, CA

Charles Hoppel, MD
Co-Director
Center for Inherited Disorders of Energy Metabolism
Case Western Reserve University School of Medicine
Cleveland, OH

Jerry Vockley, MD, PhD
Professor of Pediatrics
School of Medicine
University of Pittsburgh
Professor of Human Genetics
Graduate School of Public Health
Chief of Medical Genetics
Children's Hospital of Pittsburgh of UPMC
Pittsburgh, PA

John M. Shoffner, MD
Neurology, Biochemical Genetics, Molecular Genetics
Medical Neurogenetics, LLC
Adjunct Associate Professor, Georgia State University
Atlanta, GA

Howard Zucker, MD, JD
Former Assistant Director General
World Health Organization
Former Deputy Assistant Secretary of Health
U.S. Department of Health and Human Services
Institute of Politics Fellow, Spring 2009
Harvard University Kennedy School of Government
Cambridge, MA

Rajiv R. Varma, MD
Clinical Director
Division of Child Neurology
Children's Hospital of Pittsburgh of UPMC
Pittsburgh, PA

Giovanni Manfredi, MD, PhD
Professor of Neurology and Neuroscience
Weill Medical College
Cornell University
New York, NY

Richard H. Haas, MD
UCSD Mitochondrial and Metabolic Disease Center
University of California - San Diego
San Diego, CA

Lawrence I. Grossman, PhD
Professor of Molecular Medicine and Genetics
Henry L. Brasza Director
Center for Molecular Medicine and Genetics
Wayne State University School of Medicine
Detroit, MI

Carlos T. Moraes, PhD
Department of Neurology and Cell Biology & Anatomy
Miller School of Medicine
University of Miami
Miami, FL

Eric Schon, PhD
Professor of Genetics and Development
College of Physicians and Surgeons
Columbia University
New York, NY

Devin Oglesbee, PhD
Assistant Professor
Laboratory Medicine and Pathology
and Medical Genetics
Co-Director, Biochemical Genetics Laboratory
Mayo Clinic
Rochester, MN

Grazia Isaya, MD, PhD
Consultant and Professor
Director, Mayo Medical Scientist Training Program
Mayo Clinic College of Medicine
Rochester, MN

Konstantin Khrapko, PhD
Associate Professor of Medicine
Beth Israel Deaconess Medical Center
Harvard Medical School
Boston, MA

Stephen P. Hersh, MD, DLFAPA
Director, The Medical Illness Counseling Center
Clinical Professor of Psychiatry, Behavioral Sciences and
Pediatrics
The George Washington University
Washington, DC

Mary Kay Koenig, MD
Director - Neurometabolic & Mitochondrial Clinic
University of Texas Houston
Houston, TX

Carla Koehler, PhD
Associate Professor
Department of Chemistry and Biochemistry
University of California - Los Angeles
Los Angeles, CA

Jeff MacKeigan, PhD
Scientific Investigator
Head, Laboratory of Systems Biology
Van Andel Research Institute
Grand Rapids, MI

Phil G. Morgan, MD
Research Director
Seattle Children's Hospital
Department of Anesthesiology
University of Washington and Children's Research Institute
Seattle, WA

Jodi Nunnari, PhD
Professor and Chair
Department of Molecular and Cellular Biology
University of California - Davis
Davis, CA

Thomas W. O'Brien, PhD
Professor, Department of Biochemistry and Molecular
Biology
University of Florida
Gainesville, FL

Paulo A. Ferreira, PhD
Professor
Jules and Doris Stein Research to Prevent Blindness
Departments of Ophthalmology, Molecular Genetics and
Microbiology
Duke University Medical Center
Durham, NC

Gerald S. Shadel, PhD
Departments of Pathology & Genetics
Yale University School of Medicine
New Haven, CT

Sion Williams, PhD Department of Neurology
University of Miami
Miami, FL

Lee-Jun Wong, PhD
Professor of Molecular and Human Genetics
Baylor College of Medicine
Houston, TX

Dennis R. Winge, PhD
Department of Internal Medicine
University of Utah Health Sciences Center
Salt Lake City, UT

Tina Wenz, PhD
Department of Neurology
Miller School of Medicine
University of Miami
Miami, FL

Mindong Ren, PhD
Assistant Professor of Cell Biology
New York University School of Medicine
New York, NY

Georgirene D. Vladutiu, PhD
Director, The Robert Guthrie Biochemical & Molecular
Genetics Laboratory
Professor of Pediatrics, Neurology, & Pathology
The School of Medicine & Biomedical Sciences
The Buffalo General Hospital
Buffalo, NY

Mark Tarnopolsky, MD, PhD, FRCP
Associate Professor
Departments of Pediatrics and Medicine
McMaster University Medical Center
Hamilton, Ontario Canada

Massimo Zeviani, MD, PhD
Division of Molecular Neurogenetics
National Neurological Institute "C.Besta"
Milan, Italy

Brian Robinson, PhD
Program Head - Metabolism
Research Institute Hospital for Sick Children
Toronto, Ontario Canada

Tanja Taivassalo, PhD
Department of Kinesiology & Physical Education
McGill University
Montreal, Quebec, Canada


Posted by Lisa
on February 3, 2009


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