Mitochondrial Disease Links
There are many resources available to mito patients - including national organizations, local organizations, and foundations. The following is a list of such resources, including foundations that were started by individuals affected by mito and their families:
- The United Mitochondrial Disease Foundation
- MitoAction
- Wish Upon a Cure (David P. Campbell Foundation for Pediatric Mitochondrial Disease Research)
- Mitochondrial Research & Innovation Group (at the University of Rochester Medical Center)
- Mitochondrial Research Group (at Newcastle University, England)
- Hailey's Wish (website dedicated to the research & education of mitochondrial disease)
- Tar Heel Mitochondrial Disease Support Network (support group in North Carolina)
- Muscular Dystrophy Association (mitochondrial myopathy falls under the conditions covered by the MDA)
- The Children's Mitochondrial Disease Network (working name of the European Mitochondrial Disease Network - based in England)
- Epilepsy.com (article on recognizing mitochondrial disease - especially useful for patients suffering from seizures)
- CDC (page with information on mitochondrial disease and autism)
- CircuitBlue Mito Page (website on mitocondrial disease research and a listserv you can join, located in Chapel Hill, NC)
- The Foundation for a Cure for Mitochondrial Disease, Inc. (website for a foundation started in Connecticutt by the parents of a young girl who has passed away with mito)
- RheanaCarter (website about a girl in Georgia with mitochondrial disease with helpful information)
